Please Note: some contact details are hidden because you are not logged in. For your free Skill Share account, follow this link

Folly Pogs (FM Philanthopists) Fibromyalgia Research UK  


Fibromyalgia is hereditary and the ‘rogue gene’ often remains dormant until stress, trauma, even a house move or viral infection triggers it. From then on you will live in a world that does not understand your pain 24/7, the chronic fatigue, sleeplessness, cognitive behaviour, depression, IBS, RLS and 50 other nasty symptoms, as you look so well.  Folks and family often do not understand your invisible disability.

I was leading my life at 100mph when fibromyalgia struck me. I thought I would never walk again but positive thinking and friendship got me back on my feet and I have just finished my 3rd fibromyalgia conference. Folly Pogs is struggling for recognition, donations, sponsorship, runners and walkers to support our ’Cause for a Cure’.

If you know someone who has mysterious floating pains – pains their GP does not recognize, it could be fibromyalgia. Get in touch, and I will try to put them in touch with a support group to talk to like-minded people. This can be a life changing experience for someone with fibromyalgia. Suicides are not uncommon following isolation and depression. Everyone deserves a chance in life.  We want to find a cure to change those lives.